Mothers Day Gift

 Just wanted to share because I thought it was so cute these are the pages of a book that I put together for my mom and Scott's mom for mothers day. I titled it "two little boys" and had it printed and bound. I couldn't post them until my mom got hers in the mail. I loved it! It was a fun project to do I had the idea of taking pictures of their little body parts and putting them in rhyme to kind of make a keepsake of not only what they look like but their personalities too. I'm no poet but I'm actually proud of the way it turned out.

(if you click on the first picture it should let you open it full screen and scroll through them )

pages 1 and 2

Pages 3 and 4

Pages 5 and 6

Pages 7 and 8

Pages 9 and 10

Pages 11 and 12

Pages 13 and 14

Pages 15 and 16

Pages 17 and 18

Buffalo Wild Wings

Monday May 26th was the last fundraiser we had planned. We had a night out at Buffalo Wild Wings. For anyone who came in that night with one of our tickets the restaurant donated 15% of their bill to us. THANK YOU all who came and supported us. We ate there that night and saw a few people but we know that there were many more who came in.

Brayden eating fruit snack waiting for his corn dogs!

Satisfied after a nice meal

Even Plex came to support us!

Brayden like the video games we didn't even have to put a quarter in...

Brayden's Birthday

Brayden's Birthday was all about him! It came two weeks late because we were fundraising the two previous weekends and I didn't have the time to make him his awesome birthday cake. I knew that I wanted to make him a special special cake. He is a very special boy who doesn't always get the attention he deserves having a brother who needs so much care. I want him to be able to look back at pictures and scrapbooks and know that his mommy loves him just as much even if sometimes he wasn't able to be my entire focus. I love my Brayden bear so much he is a sweet baby with HUGE amounts of energy. He is so much fun to have around I can't imagine my world without him. He loves everyone and is always bringing smiles to everyone around him.

Birthday Boy

The AWESOME cake. Yo Gabba of course

He loved the cake!

Not even distracted by the burning candles

presents!

From Mommy and Daddy

HE LOVED IT TOO!

Eating Mono

Sweet Landen

he got blocks for his birthday too

Landen had a fun day too!

Pound the pavement for PBDs

Ken and Tracy loving time with Landen

Can't believe its been more then two weeks since we went to California. Life just keeps us so busy sometimes but I wanted to blog about our experience. It was so great not just because we had so many people support us but because we got to spend the weekend with some amazing people. We left Saturday morning and headed for our friends the Whitney's who we would be staying overnight with in California. The Whitney's are an incredible family... they lost their Graham to PBD three years ago. They are an amazing family I love visiting their home because even though I never had the honor of meeting Graham you can tell just by walking into their home that he is still very much a part of their lives. Just because Graham is no longer on earth in no way means that he is no longer an important and wonderful part of his family. I also love visiting Ken and Tracy because they love my Landen almost as much as I do. I love seeing their smiles and hearing the memories that he brings of their beloved son. There is no denying that my Little Landen could be Angel Graham's little twin. They look so much alike as do many PBD children. But Graham and Landen have the big blue eyes, blond hair and long long limbs. I loved sharing my child... We had the honor of accompanying them to their church and being introduced to friends and family. Everyone we meet commented on how it was like seeing Graham again. We got to share in the love that Angel Graham had it was such an incredible experience and I want to thank the Whitney family for letting us in.

walking with Ezra's family

Our Family getting ready to walk

Sunday morning was the day of our event we were walking the 5k. Our friends from Flagstaff also brought Ezra down. Much of their family was there too and we got to meet more amazing people. It was a nice walk 5k for you "all Americans" is just over three miles. We started out somewhere in the middle but slowed our pace so that we could all end up together (some of our people started in the back). Brayden and Landen fell asleep somewhere between miles one and two so they got a nice walk. It was a great time to enjoy talking to everyone. We were all there to support each other... its not often that you get to be with so many people who have personally been touched by this disorder. There were friends, grandparents, siblings, parents, researchers ect. all there to Pound the Pavement for PBDs.

PBD MOMMIES

I thing for me personally the best part was being able to talk to Joleen and Tracy. We are all PBD moms. Being a PBD mom is something that only a PBD mom can understand. Its so hard to sometimes feel all alone like there is no one who understands what you are going trough. There are so many wonderful mother I know who have accomplished a lot despite difficulty, tragedy, affliction, pain and the many other things that come with this world. But none of them are going through the same thing as me. Few of them understand what its like to care for a sick child. To go to appointment after appointment. To struggle to learn about a disease that is so rare. To watch you child miss milestones. Or even the joys that come with seeing your child accomplish something so monumental that others don't understand how that can be so amazing. To know what pure love is. To hold a piece of heaven on earth for a short period of time. We are PBD moms we get strength each other, we help each other, we support each other and we learn from each other.

After the event we went to the beach. I love the ocean! Apparently Brayden does too he had so much fun letting the water come in and hit him. It wasn't the warmest day ever and the ocean was cold and there was Brayden shivering but not willing to leave the water. He didn't care even when a wave came in and knocked him right over into the water. He also loved the sand and so did Landen. Landen got to crawl in the sand and feel it on his hands. He loved it. We only got to stay for a short time because we needed to go home. I'm so glad we made the effort to come.

MY BABY BOY IS 2!!!!

 

I can't believe that my baby is two. Where has the time gone? He is no longer a baby :( hes becoming the silliest little guy ever. Such a sweet little flirt who loves to get mommies attention. He loves to sing and dance and jump and play and make his mommy smile. He can be crazy full of energy one moment and snugly sweet the next. He is the sweetest "big little brother" for Landen. Just yesterday I was in the kitchen and he kept coming in asking for cookie after cookie. I thought he must of been eating them impossibly fast but when I looked over I realized he was taking them to Landen and giving them to him one at a time. Sometimes it hits me hard to realize that having a sweet child like Landen who takes up so much time and effort isn't just affecting me its going to affect every aspect of Brayden's life. I pray its for the best... I know that Landen takes up much of my time and that Brayden is often left to entertain himself. But Brayden doesn't get jealous or angry. For a toddler he has already developed and understanding and patients that amazes me. He moves to make room for Landen on my lap when Landen wants up. He knows when its okay to try and interact with Landen and when its best to just leave him alone. My little Brayden has such a silly and fun personality! He laughs and teases and smiles and winks and he knows that sometimes a cute little kiss can get him out of trouble. I love everything he brings to my life and our family... even his Yo Gabba Gabba addiction. I find that I love how excited he gets when we turn on his show. Its fun to watch him get get his little gabba friends together to play. He is so sweet to his best friend Mr. Monkeyface. I feel like I could explode from the cuteness when I watch him "share" his snack with Mr. Monkeyface or when he takes him all the way up to his bedroom and tucks him into bed and gives him a kiss. I can't count the many times he has given me a small heart attach when he climbs high things, jumps when no one is looking or suddenly disappears (he likes to hide in cupboards and closets). I love how I woke up this morning to him dragging his blanket, pillow and monkeyface onto my bed so that he could snuggle next to me for just a few seconds before getting up all excited and taring my room apart. I just love my silly little Brady bear! Happy Birthday my little boy!