My Little Landen

My Little Landen
This blog has been created to help others keep up to date and follow our journey. I will post as often as I feel there is new news in his condition or our family be it good or bad.

Tuesday, September 3, 2013

G-tube

Its been a week and a half since Landen's G-tube surgery and things are going really well. It's taken us a bit to get use to it though. We ran into some problems right off the bat because the pharmacy sent us the wrong formula (it was without fiber) and it caused Landen to get really backed up. We tried all the usual tricks most of which are very unpleasant for Landen. His tummy finally got so big and tight that we ended up taking him to the doctor who recommended a mineral oil enema (I had already given him a regular one). It took forever to find one and when I didn't even that didn't work. The following morning we woke up to POO! YEA!! since things finally "got moving" again we have not too many problems. We got the right formula and are pretty regular. We did break his feedings into smaller and more frequent because the poor baby just wasn't use to having a full tummy and when he started to eat orally again he was so stuffed an would puke a little bit. But I think we are to the point where his stomach stretching and soon enough he will be able to tolerate full feedings and I can go back to four times a day.

I will say although doing this has relieved the stress I constantly had about Landen not eating enough, it hasn't gotten easier. It still takes time. We are bolus feeding (or gravity feed) that means that I have to put everything aside to feed him. He seems to be getting a scheduled. His "breakfast" feeding and his "night time" feedings or the first and last of the day he usually refuses to eat any formula (he does eat a little real food) so I do a full feeding. During the day especially if Scotty is home the "in between" feedings he will drink. So most part he does well drinking the formula and if he doesn't drink it all he only leaves me 2 or less oz left to feed.