My Little Landen

My Little Landen
This blog has been created to help others keep up to date and follow our journey. I will post as often as I feel there is new news in his condition or our family be it good or bad.

Saturday, February 11, 2012

Landen's ENT apointment

Tuesday we took Landen to Flagstaff to the CRS clinic (children's rehab services) he was scheduled to see the ENT with audiology but as usual we got there to find there were several other people who wanted to see him. We started in the booth with the audiologist which of course as I've been saying for months didn't work out. This is the third time they have tried to do a booth test on him in the last year and in none of them has he shown any sort of response. So they decided to perform a tympanogram which measures the pressure in the ear. It showed that there was a slight problem that could be wax or fluid. Landen has never had fluid or any sort of ear infection but he has always had wax in his ears. I told this to the ENT but what do I know I'm just his mommy. She is convinced that he needs tubes in his ears even though when she looked in his ear she couldn't see anything because there was so much wax. So she told me she was going to schedule him for surgery to get tubes put in. I was against it so I made a concession since he needs a new ABR (auditory brain response.. its how we test his hearing since he is unresponsive to a booth test) I agreed to let the the ENT do and exam under anesthesia and remove the wax while he gets his ABR done and if at that time we find that he does have fluid behind the eardrum we will make a decision whether to go ahead with tubes or not.

After that we spent a few more hours seeing various people. We saw the PT, the dietitian, and a speech pathologist. They like Landen to see these people at CRS once a year or so to discuss his progress and make sure he is getting the services he needs back home. It was as always a long visit for the boys who don't like getting stuck in the exam room for hours at a time. But I have to say they do very well.

After that we went to visit our friends in Flagstaff and as always it was a nice treat to be able to talk to them and see the amazing progress that Ezra is making!

Wednesday, February 8, 2012

Catchup Update... don't worry mostly pictures :D

So its been so long since my last update I guess I just haven't felt up to it. Life is busy and when its not I hate to admit it but I think I've struggled with a little depression.Things get to me some times... This disease gets to me sometimes... I struggle everyday with what Landen is missing and all that will come. There isn't a day that goes by when I don't find myself muttering the same prayer, the prayer where I ask the Lord to help my son grow and learn and please please don't take him from me! I guess in ways he does answer Landen is growing, he's learning little by little but in the end I still fear what is to come. Its hard watching your 20 month old accomplish tasks that his older brother will never be able to do. I really haven't felt much like anything let alone sitting down and updating my blog. I feel like I've been strangely absent from Facebook even spending time online reading about my PBD family. Its not that I don't take interest in them or I forget about them, the truth is they are always in my thoughts and prayers, its just that the stress of everything in my life was weighing me down. I've come to realize that I have had a bad attitude. Mostly as selfish attitude and as we always learn in church the best way to make your life better and bring the Spirit into your life is by serving and focusing on others. I don't have some grand service project planned or anything like that (although it wouldn't be a bad idea) But I have been trying to focus more on my family, my kids and my husband. Making time to be with them and make them fill special even if I spend most of my time running here an there trying to catch up on all that needs to be done. I'm still struggling with the bad attitude here and there but I'm now seeing the light again and I'm up moving and feeling much like myself again. Not much has happened medical wise but a lot has happened family wise! So I've decided to catch everyone up with pictures! My last update was mid-October when we were preparing for Halloween so we will start there :D

October

Trunk-or-Treat:
This was our church's trunk-or-treat we went before we left for Utah so that Daddy could spend some Halloween time with the boys





Halloween:
After celebrating with Scott we headed to Utah... We spent Halloween day at my sisters house with our family!!!



November
After Halloween we stuck around in Utah to spend some time with my brother before the Army sent him far far away to Germany....

Three of my new favorite pictures!




Thanksgiving:
we had Thanksgiving early so we could celebrate all together Scott even flew in for the weekend!

Andy

Victoria and Brayden

Turkey Coma

Everyone was sooo hungry they would eat anything!!!




Dog pile!

Visiting:
There are so many people for us to see when we visit Utah

my friend Heather at her book-signing

My brothers and their new daughters

This is my brother who is now in Germany with is wife


Scott's Grandma Danielson

Heather again with Landen

My brother Isaac with Brayden


Eating lunch at the rest stop on the way home


When I got back from Utah Scott and I went on a cruise to Mexico... Just the two of us! It was so much fun!!!





December
December was a time for us to just be home after so much traveling...



Believe it or not Brayden perfected the use of a fork this month ;)




Visit with Santa:




Christmas with Grandma and Grandpa Sinex






Christmas Day!!!


The boys got new PJ's, quilts and story books...

Landen's walker all decorated :)


January 2012

Brayden got his first haircut! Landen also got one! MY BOYS ARE SO HANDSOME!!!



Found a nice day to go to the park and had lots of fun!





This month we got a new ball pit the old one was getting too small! Even Daddy can play in the new one :D